Thursday, July 26, 2012

I'm feeling a human again...

after about 8 weeks of not being able to submerge my body in water,
yesterday, I spent the afternoon in a pool in Jacksonville.
it was AMAZING,
family all around having fun,
lots of sun,
a super fun digital underwater camera,
and I felt back to normal,
I felt restored and relaxed,
and it was only day 1 of a 13 day vaca-dventure...
phew.


Sunday, July 22, 2012

What Ifs


I came around to a realization in the last couple days. I can’t live my life always thinking of what if. My brain is my biggest adversary and my biggest asset. Since the cancer diagnosis, it has been one of my biggest adversaries. I spend the majority of the days and nights thinking of what ifs.

What if they find cancer in his peritoneal cavity?

What if the chemotherapy doesn’t work?

What if the cancer comes back?

What if Jeremy dies from this?

What if we don’t get to have a long married life together?

What if I have to do this on my own?

What if we have to go to UCSD for treatment?

What if the radiologist reading the MRI doesn’t know what to look for?

What if we can’t have any more children?

What if he has to have another round of chemotherapy?

What if I can’t find a job?

What if we run out of money?

What if something happens to me too?

What if something happens to Fiona?

What if I can’t handle this?

What if I can’t lose all this weight I’ve gained?

What if I actually go crazy?

As you may imagine, these thoughts don’t make for a happy, restful or joyful life. In fact, I’m a huge downer. I’ve been so caught up thinking about what may happen or what could happen that I have been completely ignoring what IS happening.

Yesterday was a simple and joyful day with my family. We went for a walk to the grocery store, played with the chickens, played cards, played hide-and-go-seek and put on a performance in the living room for ourselves. We laughed, I let my agenda go, I was present. I felt lifted, happy, joyful. It was so powerful for me to be laughing with my family, to feel happy. I’ve missed that feeling.

I realized how much I’m letting the what ifs get in the way of the NOW. So what if the what ifs happen, if I’ve made an effort to spend my time in the present, then I know I’ll have fewer regrets. As much as I wish I had some control over what will happen, I don’t. This is one of my biggest lessons. Letting go. Being present. Practicing JOY with what I have NOW.

What I have NOW…

A husband that is currently sewing me a hand tailored skirt for our upcoming trip to Aruba.

A husband that is funny, caring, intuitive, creative, present, positive and adores me no matter what.

A daughter that is phenomenal, beautiful, brilliant, caring, empathetic, funny and curious. And who loves playing with her chickens.

I’m surrounded by beauty, I live in one of the most beautiful places on Earth (and I’ve traveled).

A doctorate degree!

2 really exciting job potentials.

A huge network of support.

A husband who is 6 weeks post-surgery, whose incision is almost closed and who can lift heavy things again!

A husband who is getting stronger every day.

A husband who has the most positive attitude about cancer EVER!

A husband who will help me help him.

An upcoming trip to the beautiful island of Aruba.

Ten beautiful homemade fresh blueberry muffins in my kitchen.

A husband who has cancer.

It’s my choice to start to use my brain as my asset. I can either give cancer the power and let it overtake me or view it as only a small part of my NOW. Each day will be a conscious effort to stay present, especially as we get closer to August and chemo. It will not always be easy for me to suppress the what ifs, but I know it will be so much easier to take one moment at a time, one day at a time. And in the future, if I’m successful at this, I’ll be much more able to cope.

Now, to spend some no-agenda time with my little girl and husband.

Thursday, July 19, 2012

AS PROMISED: ANOTHER BELLY SHOT

its almost closed, right??!?
almost no more tomato,
as Fiona likes to call it....







































will my poor belly button ever be the same?




now                                                                                      then      (included for comparison)

SHAMELESS PLUG

for a long while now, I've been sewing things.
and lately, I've been making a lot of bags.

the idea was that it would become a little side business, a little entrepreneurial fling.
then I got sick.

but as I got better, I got back to sewing again,
and, well, I've been pretty productive....

So, here's the officially, unofficial launch!

Here are some pictures of some bags that are for sale,
and I'm open to custom orders too.

you can email me at
seamonsterworkshop@gmail.com
for info

hope  you like them
and really really hope you want to own them



ALL QUIET ON THE WESTERN FRONT

it's been 12 days since I last posted...
it's been almost a whole month since I posted anything really news-worthy...

does this mean life has returned to normal?
does this mean all our problems have disappeared?

life does seem a bit more normal. in the sense that all of this cancer business isn't
as raw as it was a month ago... we've gotten into a routine,
twice-daily showers and bandage changes
(in case you're interested: my incision site is MOSTLY closed up, give me a few more days.... I'll try and put another picture up.)
but things aren't really back to normal,
or more likely,
we're still sort of defining what the new normal is going to be from here on in....

regardless,
I'm feeling much better,
I'm not sitting around as much,
I'm not pooped out as much,
I can do stuff,
I can hang out with people,
I can drive, and go places.
I can do most of the things I could do before the surgeries.
on Monday, 4 days from now, I will technically be able to lift stuff,
which means I'll likely be able to get back on the climbing wall (slowly)
as long as this belly closes up.

I think the long stretch of quiet has to do with the fact that we haven't had any more news.
we're still waiting until an Aug. 6 appt. to get chemo going.
and while that date is getting closer and closer,
nothing really new is going on.

Saturday, July 7, 2012

nurse fiona

Fiona likes to add a piece of tape to my twice daily bandages.

if I'm lucky, I get a smiley face too...